Please upgrade your browser.
|Powered by NeonCRM|
I had adductor spasmodic dysphonia. Yes, had past tense. While I know there is no cure yet for SD, the treatment I underwent has eliminated my symptoms. For me, this is as good as a cure. SD is an extremely annoying condition, but its not life threatening, and thanks to the efforts of many, there are now good options to treat it. Be open about your voice affliction, keep a good sense of humor about it, then get it treated and get your life back!
I was self-diagnosed in 1992, about 2 years after onset and after having seen a half dozen specialists. In those pre-Google days, I found an article in the periodicals section at the library. Mid-way through the first paragraph, I knew what I had. The articles author, Dr. Mitchell Brin, later confirmed this.
My symptoms were pretty characteristic for ADSD: intermittent voice breaks. Some days and some situations were better than others. My symptoms were described as mild or mild to moderate.
I tried Botox initially, with mixed results. In 2011, I underwent the Selective Laryngeal Adductor Denervation-Rennervation (SLAD-R) by Dr. Berke at UCLA Medical Center. The recovery from that was long, but the results were outstanding, effectively ridding me of this horrible condition. I have not required any further treatment. Read my full story at www.spasmodicdysphoniasurgery.com.
The NSDA assisted with support groups in the early days. The annual meetings are a great source of information exchange. By sharing positive stories like mine, the NSDA offers great hope for others.